A few weeks ago I never really understood the meaning of having your world turned upside down. Then I received a call from my OB with the dreaded news. News that made me feel sick, without hope and very lonely.... my world upside down.
We only had a weekend to enjoy the thought of our 2nd baby girl joining our family, as Scott said... We're screwed! Double the dresses, shoes, makeup and girliness- and the thought of when they start dating!!!! How quickly you wish for the those worries back when you find out your daughter will be born with Spina Bifida.
Have you ever "googled" spina bifida? I really don't recommend it. The thought of my daughter with her spine sticking out of her back, causing damage to her brain and knowing that the damage is permanent was not what I wanted to hear. I truly felt like this was a death sentence for our daughter and I really didn't feel like I was one of those "Warrior Type" women who was ready to take on this challenge. Luckily, I quickly came across a group on babycenter.com made up of moms of children with spina bifida. Thru them I have learned so much about the different variations & degree of the this birth defect and what it will be like to have this little girl.
I have researched all that I can and read every possible sight but the the best thing I could have done was getting in touch with these amazing moms. Everlee will be born with Spina Bifida, she will have challenges that typical kids don't have to deal with but there are so many things that we can do for her to help her live a happy life. This is the beginning of a big adventure, one that we will be joining Everlee on. She is already a strong little girl that I can tell is going to "wow" us all. I no longer feel helpless but empowered and blessed to have this little girl in our lives.
Please check in with us and I will do my best to keep you all updated on our baby girls "Big Adventure".
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